Allyssa (Caledon)

Purpose: To examine cancer identity and wellbeing in adult survivors of childhood cancer.
 

Eligibility: Adult survivors of childhood cancer.

Purpose: To compare different cognitive screening measures to help identity children/youth who need further assessment and resources.

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Eligibility: Paediatric cancer survivors aged 8-16, who are at least one year after the end of treatment, and English speaking. A parent will be invited to participate in the study, and a teacher may optionally be invited to participate.

Purpose: To investigate patient and informal caregiver perspectives on resident doctor evaluations and to determine how best to incorporate patient evaluations and feedback into existing medical programs.

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Eligibility: Either a neurosurgical patient or a family member, acting as an informal caregiver of a neurosurgical patient, who has had a minimum of one clinical encounter with a staff neurosurgeon, and are 18 years of age or older.

Purpose: The purpose of this study is to understand the individual and conjugal factors that contribute to the adaptation and the well-being of couples facing the cancer of their child, as well as the impact of illness on couple relationship.

Compensation: $60 per couple

Purpose: To contribute to the development of appropriate online resources that can assist children who need extra support to achieve a healthy, active lifestyle.

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Eligibility: Parents of children aged 6+ who has a medical condition or disability.

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Compensation: Having continued access to the site.

Purpose: To better understand what it like to live as a youth with chronic pain, and to create resources to share with health care teams to provide more youth-centred chronic pain care.

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Eligibility: Canadian youth aged 13-21 who currently live with chronic pain.

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Compensation: Gift card

Purpose: To examine how parents explain to the child his or her cancer diagnosis.

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Eligibility: Parent of a child who was diagnosed with cancer at SickKids between 2014-2019.

Purpose: To share research results with people affected by retinoblastoma (e.g., survivor, the immediate family of someone diagnosed with retinoblastoma etc.); to include a large diverse group or people affected by retinoblastoma in research; and to promote research that is created and led by people affected by retinoblastoma.

Purpose: To generate more robust evidence on patients’ perspectives on genetic testing to inform funding decisions and optimize genetic counselling strategies.

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Eligibility: Parents of children with cancer who have received cancer-related genetic test results from a doctor or genetic counsellor in Canada in the past year and are comfortable communicating in English.

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Compensation: $15 gift card

Purpose: To transform childhood cancer care during & beyond the COVID-19 pandemic.

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Eligibility: Canadian childhood cancer patient, survivor (aged 17 or younger), or parent/caregiver of a child with cancer.

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Compensation: Amazon gift card

Purpose: To develop a questionnaire specifically for children and teens to measure worry about recurrence. We hope that this will help us to advance research in this area, and ultimately, improve long-term wellbeing for our survivors.

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Eligibility: Diagnosed with cancer between 0-18 years of age; have completed active treatment; are currently 8-18 years of age; fluently speak and read English; currently live in Canada or the U.S.

Purpose: To increase awareness and develop programs to address the issues that YAs with cancer feel are most important.

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Eligibility: People living in Canada who are over the age of 18 and were diagnosed with any type of cancer before the age of 40.

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Compensation: $20 for each year you complete the survey.

Purpose: To uncover the
psychosocial needs of patients with retinoblastoma and their families.

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Eligibility: Retinoblastoma patient or survivor; or immediate caregiver of someone diagnosed with retinoblastoma;
aged 16 years or older;
received all or part of their care in Canada; and can read and understand English

Purpose: To understand why rare cancers occur and to accelerate the development of new therapies for these diseases.

Eligibility: View list of eligible cancers by clicking the "Learn More" button. Open internationally.

Compensation: FREE genetic sequencing available via Memorial Sloan Kettering Cancer Center for certain rare cancers.