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What September Means to Me, The Parent of a Childhood Cancer Fighter

For many parents, September represents a return to routine, a return to normalcy and perhaps even a joyous occasion as the children return to school. Long gone are the days of day camps, swimming pools, trips to the beach, or visiting grandparents, as the structure returns to our family's schedule. Once upon a time, I was one of these parents, oblivious to what September represents for the childhood cancer community -- Childhood Cancer Awareness Month. Read more here:

Young Cancer Survivors Ring in Childhood Cancer Awareness Month at Toronto Stock Exchange

Jadyn Chaisson (12), Nataniel Hudson (8) and Stephanie Simmons, three Ontario kids with a history of cancer, sounded the siren today to open trading at the Toronto Stock Exchange and mark the beginning of Childhood Cancer Awareness Month in September. Read more here: Note: Many thanks to Neal Rourke from Childhood Cancer International, the TMX Group, and The Big Book of Care ( campaign for inviting OPACC to be a guest at this morning's Toronto Stock Exchange Market opening

Survivors of childhood cancer have high-risk of recurrent stroke

Most people assume strokes only happen to octogenarians, but recent evidence suggests that survivors of childhood cancer have a high risk of suffering a stroke at a surprisingly young age. Read more here:

The Big Book of Care campaign

OPACC is proud to be involved in this important national campaign in support of Childhood Cancer Awareness Month - the Big Book of Care! The Big Book of Care is one great, big growing story of individuals and organizations that care about children with cancer and decided to unite and work as one during Childhood Cancer Awareness Month. It is a Canada-wide partnership of organizations that work to eliminate childhood cancer and support the families and children who are affected by it. Each year in September, children’s cancer groups across North America dedicate the month to raising funds and awareness, but resources are tight and marketing efforts are isolated, resulting in little or no impa

Super Sophia book donation

Many thanks to Nicolle Georgiev-Megan and The Super Sophia Project for donating copies of Sophia's newest book "Sophia and Her Friend the Raccoon: A Story of Hope" for our Parent Liaisons to give out to families at our Sick Kids drop-ins! "Join Sophia and a raccoon as they explore Sophia's journey through cancer treatment and form a special friendship along the way!" Copies can also be purchased for $10 through The Super Sophia Project Facebook page, and proceeds go to helping other families of kids with cancer: Read more about the book here:

Buildings around the world are Going Gold for childhood cancer in September

Childhood Cancer International (CCI) are calling upon all buildings, institutions, monument owners and authorities around the globe to programme their exterior illumination systems to gold on Tuesday 1 September or throughout the month of September to highlight childhood cancer. Read more here:

NCCS White Paper Highlights Post Traumatic Growth in Childhood Cancer Survivors

The ability of childhood cancer survivors to transform their traumatic health journey into positive goals and a productive adulthood is highlighted in a new white paper on Post Traumatic Growth published by The National Children's Cancer Society (NCCS), a nonprofit organization helping children with cancer and their families from diagnosis to survivorship. Read more:

Childhood Cancer Survivors Face Higher Risk of Bowel Obstruction

Survivors of childhood cancer have an increased long-term risk of intestinal obstruction requiring surgery (IOS), according to a study published in the Journal of Clinical Oncology. Read more:

Wilms’ Tumor: A Cancer Found in Children

Wilms’ tumor is a rare kidney cancer that usually will affect children up to age 6. This condition is also known as nephroblastoma and it is the most common malignant tumor of the kidneys. Typically a child will be inflicted this disease between the ages of three and four. Usually one kidney will be affected but there is a chance both kidneys can be affected. Immature kidney cells are what are believed to be the cause of Wilms’ tumor. If you notice symptoms of this disease, it can help you determine whether or not your child is inflicted with it. Read more here:

Subsequent Neoplasm Risk Up for Decades in Child CA Survivors

Survivors of childhood cancer are at increased risk for treatment-related subsequent neoplasms, even after age 40 years, according to a study published online Aug. 10 in the Journal of Clinical Oncology. Read more here:

Novel Therapeutic Agent for Pediatric Cancer Developed at UC San Diego in Clinical Trials

Donald L. Durden, MD, PhD, pediatric researcher at University of California, San Diego School of Medicine and Moores Cancer Center has identified and developed a novel therapeutic target for neuroblastoma, the second most common solid-tumor childhood cancer. Read more here:

The Importance of Including Adolescents and Young Adults With Cancer in Their Advance Care Planning

Being able to participate in their own care plan and state their end-of-life wishes while they are still healthy enough to take part helps young patients get back some sense of independence and control and provides them with a chance to write their legacy and feel less alone or isolated. Read more here:,-2015/the-importance-of-including-adolescents-and-young-adults-with-cancer-in-their-advance-care-planning.aspx

Scientists Link Gene to Inherited Form of Childhood Leukemia

A team led by MSK researchers has found that some cases of acute lymphoblastic leukemia in children may be linked to an inherited mutation in a gene called ETV6. Read more here:

Kids With Cancer Get Futuristic Chance at Saving Fertility

To battle infertility sometimes caused by cancer treatment, some children's hospitals are trying a futuristic approach: removing and freezing immature ovary and testes tissue, with hopes of being able to put it back when patients reach adulthood and want to start families. Read more here:

Transportation Funding program from CRF Canada

The Cancer Recovery Foundation of Canada has launched an additional financial aid program to help cover the cost of transportation funding for families battling cancer. This new program will provide financial aid up to $500 per patient per year and includes funding for taxis, trains, and/or bus passes to and from appointments, parking, or “Routes”. You can view and print a PDF copy of the application here or get an application through our Parent Liaisons at Sick Kids. As this program is being entirely managed by CRF Canada, if you have any questions about it please contact them directly at: Kim Ross, Program Services Manager,, 1.866.753.0303 Ext. 223.

Top Takeaways from ASCO: Survivorship

From depression to debilitating fatigue, experts ponder the ‘price of cure’ Read more here:

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