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Childhood cancer changes in response to treatment, UBC study

Of all childhood brain cancers, medulloblastoma — the development of tumours in the back and rear portions of the brain — is the most common. Attempts to develop targeted drug treatments against the disease have mostly been unsuccessful and a recent study from UBC may have found an explanation why. Read more: http://ubyssey.ca/science/childhood-cancer-changes-in-response-to-treatment-ubc-study-/

MDS Summer Playground Builds

During the summer months, our partner Million Dollar Smiles (MDS) builds playgrounds in the backyards of selected children who are navigating life-threatening illnesses and medical adversity in their everyday lives. MDS currently has spots available for this summer’s playground builds and is now looking for families in the GTA and surrounding areas only with children aged 10 months to 8 years who would be interested! The child and their family will receive the following package (free of charge to the family!): – Installation of a Deluxe Playground Kit (20ft long X 14ft) – A special engraved medal for the Million Dollar Smiles child – A Million Dollar Smiles celebration cake The playground

Standards Established for Psychosocial Care of Children With Cancer and Their Families

A group of pediatric oncology psychosocial experts developed evidence-based standards for the care of children with cancer and their families. Psychosocial risks are substantial in this patient population. Read more here: http://www.oncologynurseadvisor.com/general-oncology/standards-established-for-psychosocial-care-of-children-with-cancer-and-their-families/article/478956/

Clinical trials for childhood cancer drugs are critical, but parents don’t always understand what th

The dramatic improvements in survival for children with cancer depend on these clinical trials, and these trials depend on parents understanding the possible risks and benefits involved. But the parents of these young patients are usually unfamiliar with how these clinical trials work and are dealing with factors that make it difficult for them to give informed consent. Read more here: http://theconversation.com/clinical-trials-for-childhood-cancer-drugs-are-critical-but-parents-dont-always-understand-what-they-are-signing-up-for-53427

Forty-Four (and Other Brutal Numbers Associated With Childhood Cancer)

The National Institute of Health's web site (NIH) estimates that nearly 16,000 kids (roughly 44 each day) between the ages of 0 and 19 are newly diagnosed each year. Nearly two thousand kids will die from the disease each year. Maybe these numbers aren't high enough or shocking enough, to warrant more than 4% of funding for research that could ultimately spare our kids pain, suffering and death. Numbers are easy to dismiss unless you're the one whose number is called. Read more here: http://www.huffingtonpost.com/jacqueline-dooley/forty-four-and-other-brut_b_9316734.html

Male Childhood Cancer Survivors Less Likely to Have Kids, Study Finds

Men who survived cancer when they were children, teens or young adults seem to be less likely to have children of their own than men who never had cancer, a new study reveals. Read more here: http://health.usnews.com/health-news/articles/2016-02-24/male-childhood-cancer-survivors-less-likely-to-have-kids-study-finds

Your Child Has Cancer: Canadian Support Resources That Can Help

When your child is diagnosed with cancer, your world turns upside down. All your best laid plans fall to the wayside and in an instant you find yourself in uncharted waters. The good news is that Canada has a network of resources that can ease the emotional and financial stress for all the members of your family. Read more here: https://cancerkn.com/your-child-has-cancer-canadian-support-resources-that-can-help

Million Dollar Smiles 2016 Bearhug Program

OPACC is collecting registrations on behalf of the Million Dollar Smiles 2016 Bearhug Program. Million Dollar Smiles is a non-profit organization which exists to put smiles on faces of children facing major challenges in their everyday lives. The Bearhug Program distributes free 4′ tall teddy bears and $100 Toys R Us gift cards around the Christmas holidays; this year’s event date will be on Saturday, December 10th. Please fill out this form and we will forward your information to Million Dollar Smiles (by submitting this form, you give permission to OPACC to disclose this personal information to Million Dollar Smiles): https://www.surveymonkey.com/r/RJBJRZJ Parents will be contacted by Mill

Pediatric Palliative Care: A Multidisciplinary Approach

The American Academy of Pediatrics (AAP) recommends that ideally, palliative care should begin (or at least be offered) when a child is first diagnosed with a life-threatening disease. Read more here: https://cancerkn.com/pediatric-palliative-care-multidisciplinary-approach/?platform=hootsuite

Cancer MoonShot 2020 Announces the Formation of a National Pediatrics Consortium, a Major Milestone

Leading national children's hospitals, pediatric cancer organizations and academic centers unite with Cancer MoonShot 2020 to accelerate bringing the next-generation standard of cancer care and immunotherapy to children with cancer. The Cancer MoonShot 2020 Pediatrics Consortium include 10 founding members spanning major cities across the nation who will participate in a national data sharing infrastructure to accelerate clinical development of next-generation immunotherapy. Read more here: http://www.fiercebiotech.com/press-releases/cancer-moonshot-2020-announces-formation-national-pediatrics-consortium-maj

Red Day 2016

Attention OPACC Families in the Aurora, Newmarket, and Georgina areas! Our partners at the Cancer Recovery Foundation of Canada (CRFC) have informed us of a great opportunity for a family in these areas! They are asking for one family in need of help around their house (i.e. contracting help such as painting, gardening, carpentry, plumbing, etc.) for the purpose of Red Day held on Thursday, May 12, 2016 (the contractors would visit your home on this date, so please make sure you would be available before sending in your submission!). If you would like to be considered for this opportunity, please fill out this survey: https://www.surveymonkey.com/r/85FMZ88 by FEBRUARY 28th. We will then use

Eye movement affected in former childhood cancer patients

A study from Lund University in Sweden shows that commonly used chemo toxins impair the eyesight in childhood cancer survivors in a way that indicates an impact on the central nervous system. Read more here: http://medicalxpress.com/news/2016-02-eye-movement-affected-childhood-cancer.html

Childhood Cancer: Exercise Safety Tips

Physical activity is essential for any child, but what is safe if my child has cancer? Read more here: https://cancerkn.com/childhood-cancer-exercise-safety-tips/?platform=hootsuite

How to Avoid Caregiver Burnout

7 Tips for Caregivers of Young Adult Cancer Patients and Survivors Read more here: https://cancerkn.com/avoid-caregiver-burnout/?platform=hootsuite

Large Study of Retinoblastoma Survivors Identifies Extent of Medical Conditions Later in Life

For adult survivors of retinoblastoma, a rare childhood cancer affecting the eyes, a big concern is late-arising health conditions. These can include second cancers and eye problems, as well as treatment-related side effects, though up to now the particular problems to watch out for have not been clear. Read more here: https://www.mskcc.org/blog/large-study-retinoblastoma-survivors-identifies-extent-medical-conditions-later-life

Study finds significant cognitive impairment in adult survivors of childhood brain tumors

Cancer survivors of childhood brain tumors show significant deficits in intelligence, educational achievement and employment, even decades after treatment, an unprecedented study at St. Jude Children's Research Hospital has found. Read more here: http://medicalxpress.com/news/2016-02-significant-cognitive-impairment-adult-survivors.html

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