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New clues identified in childhood cancer syndrome

Children with the inherited cancer syndrome neurofibromatosis type 1 (NF1) are prone to developing brain and nerve tumors as well as myriad other medical problems, including autism, epilepsy and bone defects. Read more here: https://source.wustl.edu/2016/03/new-clues-identified-childhood-cancer-syndrome/

Doc: ‘Decoy’ genome 
new cancer strategy

Scientists at the Dana-Farber Cancer Institute are developing tiny “decoys” to trick an aggressive childhood cancer — a tactic they say could help prevent deadly relapses and resistance to chemotherapy that remain persistent problems for young sufferers. Read more here: http://www.bostonherald.com/news/local_coverage/2016/03/doc_decoy_genome_new_cancer_strategy

9 Things the Mom of a Child With Cancer Wants You to Know

There is no handbook, no guide and no right answers, but here’s what I, the mother of a cancer survivor, can offer you. Read more here: http://parade.com/465890/parade/9-things-the-mom-of-a-child-with-cancer-wants-you-to-know/

Help OPACC win $5,000USD

Help OPACC win $5,000USD in the FedEx Cares Spring Canadian Charity Delivery Facebook Contest! Only one vote per person accepted - just vote once and you're done! The more votes we have, the better our odds of winning. You have until April 5th to cast your vote. 1 - Login to Facebook and visit the FedEx Canada Facebook page here 2 - Select the "$5000 for Charity" tab (you may have to look under "More") 3- Click the "Vote Now" button 4 - Type Ontario Parents Advocating for Children with Cancer in the Search box 5 - Click the Vote button and that's it! Thank you!

Study suggests most female childhood cancer survivors have good chance of becoming pregnant

For women who have survived childhood cancer, the impact of modern chemotherapy regimens on the likelihood of becoming pregnant is generally small, and most have a good chance of conceiving, according to one of the largest studies of its kind published in The Lancet Oncology. In contrast, male survivors of childhood cancer are significantly less likely to have children, especially if they are treated with chemotherapy regimens containing high doses of commonly used alkylating drugs and cisplatin. Read more here: http://www.eurekalert.org/pub_releases/2016-03/tl-tlo032116.php

I Never Wanted You to Label my Late Child a “Hero”

Perhaps this is what is wrong about labeling kids with cancer as heroes. Not only is it an awful lot to live up to for those in fragile health, who might rightly resent their decline, but it gives those of us who don’t know how to interact with them a free pass to keep them at a distance. Read more here: https://cancerkn.com/i-never-wanted-you-to-label-my-late-child-a-hero/?platform=hootsuite

Many cancer survivors face financial hardships

Almost a third of cancer survivors experience financial burdens which can have lasting effects on their physical and mental health and quality of life, according to a new study published online in CANCER, a peer-reviewed journal of the American Cancer Society. Read more here: http://www.cbsnews.com/news/many-cancer-survivors-face-financial-hardships/

Cellular protein plays important role in aggressive childhood cancer

UCLA scientists have uncovered how a cellular protein contributes to an aggressive form of leukemia prevalent in young children. The discovery is an important step forward in the effort to better understand and treat aggressive childhood leukemia. Read more here: http://www.eurekalert.org/pub_releases/2016-03/uoc--cpp031116.php

Parking still pricey at Sick Kids despite subsidy

Ontario policy to lower rates not applicable to GTA hospitals with privately run parking Read more here: http://torontoobserver.ca/2016/03/03/parking-still-pricey-at-sick-kids-despite-subsidy/

Scientists work to bring about a new treatment for rare childhood cancer

In a study featured on the cover of last month's edition of the journal Cancer Cell, Anthony Faber, Ph.D., and a team of scientists demonstrated that MYCN-amplified neuroblastoma cells are highly sensitive to an investigational drug called ABT-199 that is currently being evaluated in clinical trials for another disease. Read more here: http://medicalxpress.com/news/2016-03-scientists-treatment-rare-childhood-cancer.html

Early MRI screening reduces risk of breast cancer death for survivors of childhood HL

Researchers at Princess Margaret Cancer Centre have confirmed in a screening effectiveness study that early screening with MRIs can reduce breast cancer mortality for female survivors of childhood Hodgkin's lymphoma (HL) who received chest radiation. Read more here: http://medicalxpress.com/news/2016-03-early-mri-screening-breast-cancer.html

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