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OPACC AGM 2016 presentation

OPACC was proud to have a special guest speaker for our 2016 Annual General Meeting: Dr. Maru Barrera (Ph.D., C. Psych. Psychologist, Department of Psychology and Division of Hematology/Oncology; Senior Associate Scientist, Research Institute, SickKids Hospital) presenting on "Enhancing Psychosocial Support to Children with Cancer and their Families by Conducting Early Psychosocial Assessment". You can view a copy of Dr. Barrera's presentation here. In summary, the Psychosocial Assessment Tool (PAT) is used to determine psychosocial risk in families of children with serious medical conditions based on their respones to a screening questionnaire. The results outline three tiers of family psyc

Caregiving, single parents and cumulative stresses when caring for a child with cancer

A diagnosis of childhood cancer can result in financial, emotional and physical strains on families. These strains can be a particular challenge for single parent families as they are usually the sole adult responsible for the strains of caring for their families. Read more here: https://cancerkn.com/author-commentary-caregiving-single-parents-and-cumulative-stresses-when-caring-for-a-child-with-cancer/

Making Cancer Less Painful for Kids Parent & Caregiver Survey

Parents and children often say that pain is one of the most distressing parts of a cancer diagnosis. Cancer Knowledge Network (CKN) is partnering with the Centre for Pediatric Pain Research for a year-long "Making Cancer Less Painful for Kids" campaign (#KidsCancerPain). Over the next 12 months, we will be bringing parents the very best, cutting-edge research evidence about children’s cancer pain – what causes it, common myths, how to assess it, how to treat it, and more! But the researchers need your help. We want to learn more from parents about cancer pain in children to make sure the campaign content meets parents' needs, and also so we can evaluate the impact of the campaign. We are

I Survived Childhood Cancer. Now What?

More kids are outliving their diagnosis; but many still face ill effects from treatment later. Read more here: http://health.usnews.com/health-news/best-childrens-hospitals/articles/2016-06-21/i-survived-childhood-cancer-now-what

The National Children’s Cancer Society Urges Early Preparation for Childhood Cancer Survivors Who Ar

For this spring’s high school graduates, choosing a college has been one of life’s biggest challenges. But teens who are also childhood cancer survivors will face more than just a move away from mom and dad in the fall as they deal not only with college life but healthcare issues that may affect their higher education experience. Read more here: http://www.pressreleaserocket.net/the-national-childrens-cancer-society-urges-early-preparation-for-childhood-cancer-survivors-who-are-headed-to-college-this-fall/461848/

HPV Vaccine Important Preventive Tool for Survivors of Childhood Cancer

The HPV vaccine can prevent cancer, and is especially important for survivors of childhood cancer, who are more prone to developing second cancers. Read more here: http://www.curetoday.com/articles/hpv-vaccine-important-preventive-tool-for-survivors-of-childhood-cancer?p=1

Leukaemia Insight For Condition Affecting Babies

An Australian insight into a type of leukaemia mostly affecting babies could fast-track new treatments. Read more here: http://www.huffingtonpost.com.au/2016/06/13/leukaemia-insight-for-condition-affecting-babies/

Childhood cancer survivors face several long-term risks

Despite improvements, survivors of childhood cancers still face long-term risks in terms of secondary neoplasms, nonsurgical premature menopause (NSPM), and neurocognitive function. Read more here: http://www.clinicalendocrinologynews.com/specialty-focus/menopause/single-article-page/childhood-cancer-survivors-face-several-long-term-risks/81a1ef86b88a5f9d87514c72258d5584.html

Teddy Bear Fair 2016

Attention OPACC families! The Children’s Cancer Recovery Project would like to invite you and your family as our guest to attend this year’s Teddy Bear Fair. If you are interested, please register with OPACC to secure your complimentary tickets by August 1st. Please complete information below (by submitting this form, you give permission to OPACC to disclose this personal information to the Cancer Recovery Foundation of Canada (CRFC)). Your information will be passed on to CRFC and they will put your name on a list to get your wristbands for free admission upon arrival. Register here: https://www.surveymonkey.com/r/HLXPR7V

New types of blood cancer discovered in children

Through a detailed study of leukemia cells from more than 200 children, a research group has discovered two new types of childhood leukemia. Using next-generation sequencing technology (NGS), the researchers were able to study the genome of cancer cells, which is how they discovered the new types of cancer. Read more: https://www.sciencedaily.com/releases/2016/06/160607113013.htm

Methotrexate exposure impacts cognitive processes cancer survivors need to multitask

Research from St. Jude Children's Research Hospital suggests that pediatric leukemia patients exposed to higher concentrations of the chemotherapy drug methotrexate are more likely to struggle with mental flexibility, organization and related skills as long-term survivors. Read more: https://www.sciencedaily.com/releases/2016/06/160606200106.htm

Double Stem Cell Transplant May Help Fight a Childhood Cancer

Young children with a rare and often deadly cancer of the nervous system might have a better chance of survival if they receive two stem cell transplants, a new study reports. Read more here: http://health.usnews.com/health-care/articles/2016-06-07/double-stem-cell-transplant-may-help-fight-a-childhood-cancer

Future fertility concerns for children with cancer

Doctors are hopeful that new fertility preservation techniques could prevent childhood cancer patients suffering fertility issues down the track. Read more: http://www.sbs.com.au/topics/life/health/article/2016/06/02/future-fertility-concerns-children-cancer

Toronto Inside Ride 2016 results

Many thanks to everyone who came out to support our Inside Ride event at Playdium on June 4th - together, we have raised nearly $5,000 (and counting!) for OPACC to continue supporting YOU, our families! So many amazing people to thank...let's start with special thanks to our Ambassador Families and to all of our wonderful teams and volunteers - there would be no event without you! Congratulations to the top teams who won medals for Best Team Spirit (Connor's Champions), Best Team Costume (Kitchener Waterloo Parent Support Group), Top Team Mileage (Connor's Crazies), and the Top Fundraising Team (Susan's Team OPACC)! Sincere gratitude to the Coast to Coast Against Cancer Foundation and their

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