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Survivors of Hodgkin lymphoma face high cardiovascular toxicity burden

Cardiovascular toxicities occurred more frequently and severely among adult survivors of pediatric, adolescent and young adult Hodgkin lymphoma than in the general population, according to study results published in The Lancet Oncology. Read more here: http://www.healio.com/hematology-oncology/pediatric-oncology/news/in-the-journals/%7B83df3097-05e5-4389-9834-db34602994cf%7D/survivors-of-hodgkin-lymphoma-face-high-cardiovascular-toxicity-burden

Submit your story for the Big Book of Care CCAM campaign!

This September, OPACC will once again be partnering with The Big Book of Care (www.bigbookofcare.org) for a national childhood cancer awareness month campaign. To that end, that Big Book of Care has asked its partner organizations for help in creating a campaign that will be heavily content-based, featuring the stories, photos and videos of our families via social media and then directing viewers to read the whole story at the bigbookofcare.org (similar to the "Humans of New York" initiative which you can see here: http://www.humansofnewyork.com/tagged/pediatric-cancer). The goal is to have a story per day for the entire month of September. We are reaching out to our OPACC families who may b

Pulmonary complications in adult survivors of childhood cancer

A team of researchers from nine leading academic hospitals and research centers have published a paper in the early online edition of the journal Cancer that describes pulmonary outcomes among childhood cancer survivors. Read more here: http://www.eurekalert.org/pub_releases/2016-08/chla-pci081516.php

Genes linked to rare cancer affecting children and young adults uncovered

Scientists have uncovered a host of genes linked to a rare type of cancer that disproportionately affects children and young adults. Sarcomas can develop in a range of tissues including muscle, bone, tendons and blood vessels. While they occur across all age groups, they make up 15% of all childhood cancers and more than 10% of cancers in those aged between 15 and 24. Read more: https://www.theguardian.com/science/2016/aug/04/genes-linked-to-rare-cancer-affecting-children-and-young-adults-uncovered

New St. Jude Research Shows Lifelong Effects of Pediatric Cancer Fight

With cure rates for pediatric cancer at historic highs, researchers at St. Jude Children’s Research Hospital have been directing their efforts toward what comes next. Specifically: what is the price of that cure later in the patient’s life? Read more: https://www.memphisdailynews.com/news/2016/aug/5/new-st-jude-research-shows-lifelong-effects-of-pediatric-cancer-fight/

Faces of OPACC campaign

Throughout the month of August, OPACC invites you to be a part of our new campaign entitled “Faces of OPACC”! While we have collected dozens of wonderful written testimonials throughout our 20+ years of supporting families, we thought that it would be even more impactful for the world to hear directly from - and put a face to - real childhood cancer families telling us their child's story and how OPACC has helped them during their childhood cancer journey. All you need to do is click the “Share Your Story” button at the link below and record a short (3 minute max!) video right through your webcam or smartphone answering this question: “Tell us your child's story and how OPACC has helped your

Checkpoint inhibitor therapy more economical, safe than CAR T cells in pediatric leukemia

Novel advances in the use of checkpoint inhibitors – such as an anti-PD1 or anti-PDL1 – to treat pediatric leukemia may result in the ability to eliminate the use of CAR T-cell therapy in that patient population in the future, according to Donald Durden, MD, PhD, vice chair for research at UC San Diego’s Department of Pediatrics and associate director for pediatric oncology at the Moores UCSD Cancer Center. Read more here: http://www.healio.com/hematology-oncology/leukemia/news/online/%7Be0935e2e-d5ed-4299-a6eb-4a7bfa4ea252%7D/checkpoint-inhibitor-therapy-more-economical-safe-than-car-t-cells-in-pediatric-leukemia

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