Unituxin (dinutuximab, ch14.18 immunotherapy) with Irinotecan and Temozolomide for Relapsed and Refractory High-Risk Neuroblastoma - Patient Input for Drug Approval Application (pCODR)

Purpose: To help formulate a Patient Input Submission that will be used by the pan-Canadian Oncology Drug Review (pCODR) as part of their drug review process to inform their recommendation on Unituxin immunotherapy for the treatment of patients with relapsed and refractory neuroblastoma in combination with irinotecan and temozolomice.

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Eligibility: Patient or family member/parent of a child with neuroblastoma located in or outside of Canada.

CCSC Market Research Survey

Purpose: To help Childhood Cancer Survivor Canada (a new start-up nonprofit organization being launched to support childhood cancer survivors) determine how best to connect with and support survivors.

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Eligibility: Childhood cancer survivors (any age).

Neuroblastoma Patient/Family Questionnaire

Purpose: To gather information from patients and families affected by pediatric neuroblastoma to help guide new research and therapeutic interventions.

Complementary Health Approaches Use by Children and Adolescent with Cancer

Purpose: This study is being done to find out what are you and your parents thoughts on a questionnaire for children
and teens with cancer.

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Eligibility: You must be between 8 and 18 years of age, diagnosed with cancer, have used any of the products
and practices of CHA, be able to speak and read English, and be willing to complete online surveys.

Web-based Exercise Study for Children and Adolescents with Acute Lymphoblastic Leukemia

Purpose: To study the effect of a reward-based website on fitness and quality of life in children and adolescents who have completed chemotherapy for ALL.

Eligibility: Children aged 8-15 who have completed chemotherapy for ALL within the past 90 days, have access to a smart phone, and other criteria (see website for full list).

Compensation: Educational materials, an activity monitor and/or stickers, T-shirts and gift cards ($5 value).

Parents of Little Fighters

Purpose: The purpose of this study is to understand the individual and conjugal factors that contribute to the adaptation and the well-being of couples facing the cancer of their child, as well as the impact of illness on couple relationship.

Compensation: $60 per couple

COVID-19 and Survivors of Childhood Cancer

Purpose: To see how childhood cancer survivors are faring during the pandemic with a view to hopefully tailoring support to address any needs more effectively.

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Eligibility: Childhood cancer survivors who were diagnosed at least five years ago and/or off treatment for 2 years. It can be answered by survivors 15 years of age or older or by parents if under age 15.

Make an Impact Study

Purpose: To understand why rare cancers occur and to accelerate the development of new therapies for these diseases.

Eligibility: View list of eligible cancers by clicking the "Learn More" button. Open internationally.

Compensation: FREE genetic sequencing available via Memorial Sloan Kettering Cancer Center for certain rare cancers.

​Patient Engagement Strategy for Retinoblastoma Research

Purpose: To share research results with people affected by retinoblastoma (e.g., survivor, the immediate family of someone diagnosed with retinoblastoma etc.); to include a large diverse group or people affected by retinoblastoma in research; and to promote research that is created and led by people affected by retinoblastoma.

Well-Being and Pain in Survivors of Childhood Cancer Study

Eligibility: Canadians ages 8 to 25 with a history of childhood cancer

Cancer Experience Registry

Purpose: To support greater understanding of the needs of cancer survivors and those living with the diagnosis, raise awareness of the challenges of people affected by cancer, and develop programs and services that will address the needs and ultimately improve the long term quality of life of people impacted by cancer.

Self-Care for Cancer Survivors

Purpose: To evaluate a self-care approach for cancer survivors with low mood. The approach tested involves a set of tools: workbooks, CDs, a DVD, and online tools. Participants' answers help researchers understand whether the tools are useful in improving mood.