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Research Studies

Allyssa (Caledon)


Learn more about various research studies that are looking for participation from childhood cancer families. While some offer financial compensation for your participation, all of them are being done for the greater good and to help other families like yours!

Childhood Cancer Identity Project

Purpose: To examine cancer identity and wellbeing in adult survivors of childhood cancer.

Eligibility: Adult survivors of childhood cancer.

Sensitivity and Specificity: Identification of an Optimal Cognitive Screening Measure in Pediatric Oncology 

Purpose: To compare different cognitive screening measures to help identity children/youth who need further assessment and resources.

Eligibility: Paediatric cancer survivors aged 8-16, who are at least one year after the end of treatment, and English speaking. A parent will be invited to participate in the study, and a teacher may optionally be invited to participate.

Neurosurgical Patient Perspectives on Evaluation of Residents in Competence by Design Education 2021

Purpose: To investigate patient and informal caregiver perspectives on resident doctor evaluations and to determine how best to incorporate patient evaluations and feedback into existing medical programs.

Eligibility: Either a neurosurgical patient or a family member, acting as an informal caregiver of a neurosurgical patient, who has had a minimum of one clinical encounter with a staff neurosurgeon, and are 18 years of age or older.

Parents of Little Fighters

Purpose: The purpose of this study is to understand the individual and conjugal factors that contribute to the adaptation and the well-being of couples facing the cancer of their child, as well as the impact of illness on couple relationship.


Compensation: $60 per couple

Impact of CHEO Active Website

Purpose: To contribute to the development of appropriate online resources that can assist children who need extra support to achieve a healthy, active lifestyle.

Eligibility: Parents of children aged 6+ who has a medical condition or disability.

Compensation: Having continued access to the site.

Advancing Patient-Centred Care in Young People Living with Chronic Pain

Purpose: To better understand what it like to live as a youth with chronic pain, and to create resources to share with health care teams to provide more youth-centred chronic pain care.

Eligibility: Canadian youth aged 13-21 who currently live with chronic pain.

Compensation: Gift card

My Child Has Cancer, Now What: How Parents Relay this Information to Their Child

Purpose: To examine how parents explain to the child his or her cancer diagnosis.

Eligibility: Parent of a child who was diagnosed with cancer at SickKids between 2014-2019.

Patient Engagement Strategy for Retinoblastoma Research

Purpose: To share research results with people affected by retinoblastoma (e.g., survivor, the immediate family of someone diagnosed with retinoblastoma etc.); to include a large diverse group or people affected by retinoblastoma in research; and to promote research that is created and led by people affected by retinoblastoma.

Patient-reported Genetic testing Utility InDEx (P-GUIDE)

Purpose: To generate more robust evidence on patients’ perspectives on genetic testing to inform funding decisions and optimize genetic counselling strategies.

Eligibility: Parents of children with cancer who have received cancer-related genetic test results from a doctor or genetic counsellor in Canada in the past year and are comfortable communicating in English.

Compensation: $15 gift card

The Beyond Study

Purpose: To transform childhood cancer care during & beyond the COVID-19 pandemic.

Eligibility: Canadian childhood cancer patient, survivor (aged 17 or younger), or parent/caregiver of a child with cancer.

Compensation: Amazon gift card

Worry About Cancer Recurrence Study

Purpose: To develop a questionnaire specifically for children and teens to measure worry about recurrence. We hope that this will help us to advance research in this area, and ultimately, improve long-term wellbeing for our survivors.

Eligibility: Diagnosed with cancer between 0-18 years of age; have completed active treatment; are currently 8-18 years of age; fluently speak and read English; currently live in Canada or the U.S.

The Recover Study

Purpose: To increase awareness and develop programs to address the issues that YAs with cancer feel are most important.

Eligibility: People living in Canada who are over the age of 18 and were diagnosed with any type of cancer before the age of 40.

Compensation: $20 for each year you complete the survey.

Evaluating Psychosocial
Needs of Retinoblastoma
Patients and Families

Purpose: To uncover the
psychosocial needs of patients with retinoblastoma and their families.

Eligibility: Retinoblastoma patient or survivor; or immediate caregiver of someone diagnosed with retinoblastoma;
aged 16 years or older;
received all or part of their care in Canada; and can read and understand English

Make an Impact Study

Purpose: To understand why rare cancers occur and to accelerate the development of new therapies for these diseases.


Eligibility: View list of eligible cancers by clicking the "Learn More" button. Open internationally.


Compensation: FREE genetic sequencing available via Memorial Sloan Kettering Cancer Center for certain rare cancers.

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