HELPFUL LINKS

Adolescents/Young Adults (AYA):

An online community to help teens with cancer deal with the possible appearance-related, social and nutritional side effects of treatment
An online learning hub that provides youth with information on what to expect during cancer diagnosis and treatment. Developed by researchers at SickKids.
Adolescents & Young Adults with Canc
Report developed by the Canadian Partnership Against Cancer that presents for the first time national data on the entire continuum of cancer control in AYAs
Young Adults Fighting Cancer Guide
Provides support, facilitates connections and empowers young women (18-40) who are courageously overcoming the social and emotional challenges of being diagnosed with cancer across Canada.
POGO's AfterCare Program provides systematic follow-up for childhood cancer survivors – helping survivors stay healthier
Stupid Cancer (the largest US-based charity that comprehensively addresses young adult cancer)
AYA Cancer Canada Resource Portal (AYA resources)
The Ulman Cancer Fund for Young Adults (has developed several useful publications with a focus on young adults battling cancer)
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Bereavement:
See our special section on bereavement support here

Education:
See our special section on education supports here

Finances & Freebies:
Also see our special section on parking & transportation here

A Child's Voice Foundation (provides free wigs and financial assistance to financially disadvantaged children in Canada who are facing illness)
Canadian Cancer Society Wheels of Hope program (transportation for treatments)
Candlelighters Ottawa (for families in Capital region: parking program, financial assistance, bursaries, travel funds, gift cards)
Candlelighters Simcoe (for families in Simcoe County & surrounding areas: emergency financial assistance and Christmas gifts program)
Chai Lifeline Canada (for Jewish children diagnosed with a life-threatening illness: financial assistance, Disney trips, event tickets)
Childcan Support Services (for families in SW Ontario: parking program, financial assistance, meal vouchers, bursaries, volunteer tutoring)
Childhood Cancer Canada Foundation (survivor scholarships, free event tickets, funeral financial assistance)
Children's Wish Foundation of Canada (wish-granting organization)
The Chiropractic Cancer Foundation for Children (free chiropractic healing for kids with cancer)
Cottage Dreams Cancer Recovery Initiative (free week at donated cottage for cancer survivors)
The Compassion Program provides free admission tickets to partnering Central Florida theme parks.
Free portrait sessions for childhood cancer patients and survivors
Employment Insurance special benefits for Family Caregivers (Government of Canada)
Government of Ontario Trillium Drug Program (may help cover expenses for drugs not covered by OHIP)
Help a Child Smile (for families in Hamilton: offer hospital parking program at McMaster and for Hamilton transplant patients at SickKids)
Provides Canadians in financial need with free travel to medical care far from home, regardless of age or medical need.
Icing Smiles Canada (provides free custom cakes to families impacted by the critical illness of a child)
The James Fund (has patient amenities fund to provide financial assistance for neuroblastoma families at SickKids)
Jennifer Ashleigh Children's Charity (provides financial assistance to families of seriously ill children)
Provide free weekly classes for sick children in the mind-body techniques found in the martial arts
Provides free hats to children battling cancer
Make-A-Wish Canada (wish-granting organization)
Million Dollar Smiles (OPACC program that provides summer playground builds and Christmas gift packages)
NOFCC (for families in Sudbury & area: financial assistance programs, tutoring, parking program, travel & accommodation reimbursement, funeral costs, bursaries)
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Mental Health:
See our special section on mental health supports here

Miscellaneous:

Advocates for translational research and effective treatments to realize the goal of curing childhood, adolescent, and young adult cancers.
The Childhood Cancer Database Project was created by Alex’s Lemonade Stand Foundation to better understand how childhood cancer affects families.
Childhood Cancer Guides are a series of well-respected books that are reviewed by experts and full of practical and poignant stories from families of children with cancer.
Online childhood cancer resource library
Helena’s Hope is supported by over 150 Canadian childhood cancer families from 8 Provinces who are collaboratively advocating the government for increased funding and access to early stage clinical trials and innovative treatments.
Free kid-friendly brain tumour resources
Kids Cancer Pain: Bringing parents the very best, cutting-edge research evidence about children’s cancer pain – what causes it, common myths, how to assess it, how to treat it, and more!
Use the Late Effects After Treatment Tool (LEATT) to learn about the potential late effects that may occur as a result of having cancer and treatment as a child.
N.G. Tubes for Kids
Free e-book by Angus Olsen of "I Draw Childhood Cancer" (fb.me/idrawchildhoodcancer)
Pediatric Oncology Exercise Manual (P.O.E.M.)
POGO Atlas of Childhood Cancer in Ontario
POGO Childhood Cancer Resource Guide
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Other Helpful Organizations & Resources:

Camp Ooch (camp for kids with cancer)
Camp Quality (camp for kids with cancer)
Camp Trillium (camp for kids with cancer)
Canadian Cancer Society (link to their childhood cancer resource page)
Created by a group of Canadians concerned about cancer and cancer survivorship issues.
Cancer Knowledge Network (directly addresses many areas of the cancer world, including Young Adults, Oncofertility, Patient Advocacy and Childhood Cancer)
CaringBridge (website that allows people to easily get updates and offer support and encouragement)
Childhood Cancer Canada Foundation (their mission is to create victories for Canadian children with cancer through investment in research and education/community programs)
Childhood Cancer International (an international umbrella organization of childhood cancer grassroots and national parent organizations)
The Coast to Coast Against Cancer Foundation (Canada’s leading national charity devoted to fighting childhood cancer; funds OPACC's Parent Liaison program)
Imaginary Friend Society
A short film series featuring kid-friendly videos that help children with cancer understand a wide range of important cancer-related topics.
The James Fund for Neuroblastoma Research (the largest neuroblastoma funding group in Canada; runs an annual weekend retreat for neuroblastoma families in Ontario)
Lainie's Angels (a U.S.-based foundation that provides peer mentoring support to families of children with cancer and blood disorders); initial funder of OPACC's Parent Liaison program
Leukemia & Lymphoma Society of Canada (their mission is to cure blood cancers and improve the quality of life of patients and their families)
Lotsa Helping Hands (easily organize meals & help for friends & family in need)
Meal Train (organize meals for a friend)
POGO (their mission is to improve the circumstances of all children who are afflicted with cancer and those of their families and caregivers)
Ronald McDonald Houses (gives families a place to stay close to the hospital where their child is being treated)
The Hospital for Sick Children (SickKids) (Toronto)
Survivor Link (designed to increase awareness and knowledge about the life-long healthcare needs of pediatric cancer survivors)
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Support:

Alex's Lemonade Stand Foundation's SuperSibs! Program (sibling support)
Brain Tumour Foundation of Canada BrainWAVE program (support for families of pediatric brain tumour patients)
The Brain Tumour Foundation of Canada's closed Facebook support group for parents of a child with a brain tumour.
Provides free and professionally-led online support groups for those who are unable to attend a professionally-led face to face support group because they live in a rural area or have a busy schedule of medical appointments or caregiving duties.
Candlelighters Ottawa
Candlelighters Simcoe (Barrie)
Chai Lifeline Canada (for Jewish families: counselling, retreat, bereavement program, telephone support groups)
Hosts informal monthly parent support group sessions in London, Sarnia and Windsor, providing parents with the opportunity to gather and support one another
Gilda's Club Greater Toronto
Gilda's Club Simcoe Muskoka
Grandparents of Cancer Kids: International online (on Facebook) support group for grandparents whose grandchildren are, or have been, going through a battle with cancer.
Hearth Place Cancer Support Centre Pediatric Cancer Program (Oshawa)
HopeSpring Cancer Support Centre (Kitchener)
Help a Child Smile (Hamilton)
Northern Ontario Families of Children with Cancer (Sudbury)
Rebounders Canada (adult survivors support)
Startthetalk.ca: Supporting children and teens when a family member has cancer. A guide for educators, healthcare professionals, patients and those close to them.
Various locations throughout Ontario with a variety of support programs
Wellwood (cancer support centre in Hamilton)
OPACC's Community Parent Support Groups page
OPACC's Parent Liaison program page (in-hospital support at SickKids)
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If you would like to suggest a resource for this page, please email us!

Disclaimer:
 

OPACC does not represent or endorse any of the links and resources provided here. Therefore, mention of these resources cannot be construed as an endorsement or recommendation.


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In general, it is not OPACC's intention to provide specific medical advice to users of its Web site, but rather to provide users with information to help them better understand their health, diagnosed conditions, and the current range of approaches related to cancer treatment, prevention, screening, and supportive care. OPACC urges users to consult with a qualified physician for diagnosis and for answers to their personal medical questions.

 

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