Research study for ovarian germ cell tumour patients

Ovarian germ cell tumors (OGCT) are an extremely rare form of cancer that typically occurs in young women. The underlying biological cause of these tumors is unknown. The "Make an Impact" program at Memorial Sloan Kettering Cancer Center (MSK) in New York City is researching these tumors to find out more about the best ways to treat them. The study has quickly become the largest ever genomics study of this disease which aims to determine the genetic basis of this disease and helps scientists develop new and more effective treatments. To do this, MSK researchers need samples from people with these tumors, in order to study them. This study is also open to Canadian participants.

If a girl or young woman you know has received chemo for OGCT in the past 4 years, MSK is offering for FREE their proprietary genomics test, "MSK Impact." Similar tests are valued at $5,000 USD. It is simple to participate and everything is handled via courier by a trained study coordinator (a blood sample or cheek swab will be required). The study coordinator will handle the whole process with the patient and their healthcare team. Results will be returned to the patient and their physician. The test results can provide a tremendous amount of molecular information about a patient’s disease, such as insight into what kinds of mutations different tumors have, and how these mutations impact patient responses to various kinds of treatment. You can read more about the test here.

If you have any questions or know of someone who would be a good candidate and is interested in participating, please contact OPACC at info@opacc.org and we'll put you in touch with the study coordinator.