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End of Life Equality in the Childhood Cancer Community

Until we needed to enroll my daughter Alexis in a hospice program, I really had no idea how poorly we as a country manage the needs of children who face terminal diseases. Admittedly, having a conversation about children who face death from disease is not the most pleasant of topics. With that said, considering the fact that cancer is the number one leading cause of death by disease in this country for our children, it truly surprised me, and continues to surprise me, the lack of standard of care for children in hospice settings.

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